0.4.0 - ci-build

ONCOnnectTumorboardIG - Local Development build (v0.4.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

Artifacts Summary

This page provides a list of the FHIR artifacts defined as part of this implementation guide.

Structures: Resource Profiles

These define constraints on FHIR resources for systems conforming to this implementation guide.

Comorbidities (Profile)

Captures the comorbidities of a patient.

DocumentReference (Profile)

Captures the metadata for a document or file. Files aren't included in the registration bundle. Instead they are uploaded afterwards. Check out the guide to learn more.

ECOG Performance Status (Profile)

Captures the ECOG performance status of a patient, which is a measure of their functional status and ability to perform daily activities.

Family History (Profile)

Captures the family history of a patient, including conditions and relationships to all family members.

Family History Member (Profile)

Captures information about a family member's health history, including conditions and their relationship to the patient.

Karnofsky Performance Status (Profile)

Captures the Karnofsky performance status of a patient, which is a measure of their functional status and ability to perform daily activities.

Oncological History (Profile)

Captures the patient's oncological history, including conditions and events that are relevant to their health status. The resources that should be used to represent the different events are listed below.

Event Profile
Staging (Therapy response) MII PR MTB Response Befund
Staging (TNM) ONCOnnect PR TB TNMStaging
Surgery MII PR Onkologie Operation
Tumorboard MII PR Onkologie Tumorkonferenz
Radiotherapy MII PR Onkologie Strahlentherapie
Chemotherapy MII PR Medikation MedicationStatement
Guideline ("Leitlinie") CarePlan
(Other) Observation / ..

Previous tumor conditions shouldn't be tracked here. Instead they have their own Previous Tumors list.

In case it is not possible or requires significant effort to track the patient history in a structured way, you should still use one base resource per event, but only use the note property to capture the information. This is why this profile only defines the Reference type to link to FHIR base resources and not the specific MII profiles. E.g. the MII Onkologie Operation profile would require a structured OPS code. Please include a date (YYYY-MM-DD, YYYY-MM, YYYY, DD.MM.YYYY or DD.MM) in the note to indicate when the event occurred.

Oncological History Guideline (Profile)

The guideline (Leitlinie) followed in the treatment of the patient. The profile currently only exists to differentiate between guideline and other observation types in the oncological history.

Patient (Profile)

Captures the basic information about a patient.

Previous Tumors (Profile)

A list of all previous tumors of a patient

Primary Diagnosis (Profile)

Captures the primary diagnosis of a patient, including clinical status, verification status, associated codes and staging. If the primary diagnosis is a recidive, the original primary diagnosis should be captured in the previous tumors list.

Registration (Profile)

The ServiceRequest is the central resource for capturing the registration of a patient in a tumor board. It maintains status information and links to all other relevant resources.

Registration CHARITE MTB (Profile)

The specific ServiceRequest for the CHARITE MTB registration.

Registration WTZ MTB (Profile)

The specific ServiceRequest for the WTZ Essen MTB registration.

Registration WTZ Sarkom (Profile)

The specific ServiceRequest for the WTZ Essen Sarkom registration.

Requester (Profile)

Captures the information about a requester and links to their role and organization.

Requester Department (Profile)

Captures the information about a requester's department.

Requester Hospital (Profile)

Captures the information about a requester's hospital.

Requester Role (Profile)

Captures the role of a requester, including their contact information and associated organization.

Smoking Status (Profile)

Profile based on the ISIK Raucherstatus, which is unfortunately non-functional. The profile captures the smoking status of the patient as a general category.

Smoking Status Pack Years (Profile)

The profile captures the smoking status of the patient in pack years.

TNM Staging (Profile)

Captures the staging (TNM) of a tumor using MII profiles.

Therapy Concept (Profile)

Captures the therapy concept associated with the primary diagnosis.

Terminology: Value Sets

These define sets of codes used by systems conforming to this implementation guide.

Document Type (ValueSet)

ValueSet for the type of document attached to a tumorboard registration.

ONCOnnect OncoTree (ValueSet)

ValueSet placeholder for tumor types based on the OncoTree classification. Includes all codes from the ONCOnnect_CS_TB_OncoTree code system.

Profile Version (ValueSet)

ValueSet for the version of the profiles used in the tumorboard IG.

Request Outcome Error Details (ValueSet)

Value set for capturing details about the outcome of a request, such as reasons for a request being rejected or not performed.

Requester Department Identifier (ValueSet)

ValueSet for the departments of requesters.

ServiceRequest Category (ValueSet)

ValueSet for the category of the ServiceRequest in the context of tumor boards.

Terminology: Code Systems

These define new code systems used by systems conforming to this implementation guide.

ONCOnnect OncoTree (CodeSystem)

CodeSystem placeholder for tumor types based on the OncoTree classification. The actual codes are fetched at runtime from the OncoTree API. There is also a human friendly search.

Citation:

  • OncoTree: A Cancer Classification System for Precision Oncology; Kundra et al. 2021; JCO Clinical Cancer Informatics; doi: https://doi.org/10.1200/CCI.20.00108
Profile Version (CodeSystem)

CodeSystem for the version of the profiles used in the tumorboard IG.

Request Outcome Error Details (CodeSystem)

Code system for capturing details about the outcome of a request, such as reasons for a request being rejected or not performed.

Requester Department Identifier (CodeSystem)

CodeSystem for the departments of requesters. Only contains placeholder values for now

ServiceRequest Category (CodeSystem)

CodeSystem for the category of the ServiceRequest in the context of tumor boards.

Example: Example Instances

These are example instances that show what data produced and consumed by systems conforming with this implementation guide might look like.

Comorbidities (Example)
Diagnose: COPD (Example)
Diagnose: Diabetes Mellitus (Example)
Diagnose: Hypertonie (Example)
DocumentReference (Example)

Immunohistochemistry report

DocumentReference Tumorboard Result (Example)

Tumorboard result protocol

ECOG Performance Status (Example)
Family History (Example)
Family History Member Father (Example)
Family History Member Grandfather (Example)
Family History Member Mother (Example)
Karnofsky Performance Status (Example)
Oncological History Chemotherapy (Example)

An example of chemotherapy in the oncological history.

Oncological History Guideline (Example)

An example of a guideline followed in the treatment of the patient.

Oncological History Radiotherapy (Example)

An example of radiotherapy in the oncological history.

Oncological History Staging Therapy Response (Example)

An example of a therapy response staging in the oncological history.

Oncological History Surgery (Example)
Oncological History Surgery Narrative (Example)
Oncological History Tumorboard (Example)

An example of a tumorboard in the oncological history.

Patient (Example)
Patient History (Example)
Patient History Short (Example)
Previous Tumor Mamma with Coded Data (Example)
Previous Tumor Skin with Text Data (Example)
Previous Tumors (Example)
Primary Diagnosis (Example)
Registration CHARITE MTB (Example)
Registration WTZ MTB (Example)
Registration WTZ Sarkom (Example)
Requester (Example)
Requester Department (Example)
Requester Hospital (Example)
Requester Role (Example)
Smoking Status (Example)
Smoking Status Pack Years (Example)
TNM Staging (Example)
TNM Staging M (Example)
TNM Staging M0 (Example)
TNM Staging N (Example)
TNM Staging N0 (Example)
TNM Staging T (Example)
TNM Staging T1 (Example)
TNM Staging T1N0M0 (Example)
Therapy Concept (Example)
Tumorboard Registration CHARITE MTB Bundle (Example)

An example Bundle for a Tumorboard Registration at CHARITE MTB.

Tumorboard Registration WTZ MTB Bundle (Example)

An example Bundle for a Tumorboard Registration at WTZ Essen MTB.

Tumorboard Registration WTZ MTB Bundle (Example)

An example Bundle for a Tumorboard Registration at WTZ Essen MTB.